In the last of a series, columnist Jennifer Lynne talks with Chip Hailey about how gene therapy has transformed his life with hemophilia B.

While packing for a move, columnist Joe MacDonald marvels at the differences between his two sons' experiences with hemophilia.

Columnist G Shellye Horowitz chats with four women about their struggles to obtain a von Willebrand disease diagnosis.

CAR T-cell therapy, a type of treatment that weaponizes the body’s immune system and was originally developed to treat cancer ...

Columnist Alliah Czarielle describes how her husband, who's living with hemophilia, has taken on an athlete mindset.

My family gathered to take pictures. We drove to the Bosque, the cottonwood forest that borders the Rio Grande and runs through New Mexico. It’s a beautiful place with running water and trees. The ...

The blood-clotting protein factor VIII (FVIII) that’s missing or faulty in people with hemophilia A is flexible and adopts multiple shapes, some of which favor the binding of neutralizing antibodies ...

Second in a series. Read part one. In part one of my interview with Chip Hailey, a 75-year-old from Tennessee, we explored what led him to pursue gene therapy for hemophilia B, his lifelong journey ...

Many of my recent columns have focused on my youngest son, Caeleb, and his transition into adulthood. I’ve shared how we’ve empowered him to live his best life, including lessons on taking ...