Cystic Fibrosis Foundation4d
International Journal Publishes Recommendations for CF Newborn Screening
The International Journal of Neonatal Screening, an international, peer-reviewed journal focused on newborn screening and medicine, published Cystic Fibrosis Newborn Screening: A Systemic ...
Cystic Fibrosis Foundation5dOpinion
CF Foundation Responds to Mass Reductions in Force Across the FDA and NIH
BETHESDA, Md. (April 2, 2025) — The Cystic Fibrosis Foundation issued the following statement in response to recent mass ...
Cystic Fibrosis Foundation6d
Patient Groups Urge Caution Around Disruptions to Critical Safety-Net Programs
Drastic changes to essential services could have a devastating impact on patient health and well-being.
Cystic Fibrosis Foundation13d
CF Foundation Invests Up to $2.3 Million to Develop Test for Lung Infections
The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor ...
Cystic Fibrosis Foundation18d
Navigating My Son’s Sudden Pancreatitis
As I sat in the genetic counselor’s office just one month into being a new mom, I found myself wishing I would’ve paid closer attention to the biology unit on Punnett squares in high school. “OK, so I ...
Cystic Fibrosis Foundation18d
Cystic Fibrosis Foundation Celebrates New National Volunteer Advocacy Co-Chairs
The Cystic Fibrosis Foundation is proud to announce the selection of Kirk Astroth, an adult with cystic fibrosis, and Brittney Householder, godmother of a teen living with CF, as its new National ...
Cystic Fibrosis Foundation19d
Raising a Child With Cystic Fibrosis
Our story begins in October 2023. As a well-seasoned mom, I gave birth to my third child and finally felt all the love, joy, and excitement to have my baby in my arms. What I didn’t know at the time ...
Cystic Fibrosis Foundation27d
Gratitude and Guilt With CF
I’ve found that one of the greatest misconceptions about living with a chronic disease is that it is purely a physical battle. Every difficulty — physical or otherwise — manifests emotionally. For ...
Cystic Fibrosis Foundation1mon
CF Foundation Comments on Draft Guidance on the Use of Medical-Grade Pulse Oximeters
In a letter to the U.S. Food and Drug Administration, the Cystic Fibrosis Foundation responded to the agency’s draft guidance entitled “Pulse Oximeters for Medical Purposes — Non-Clinical and Clinical ...