News

The Giorgio Foundation and the University of Pittsburgh announce the establishment of The Giorgio Foundation Endowed Chair in the School of Medicine's Department of Neurosurgery with a total ...
Colbeck Capital Management, a leading middle-market private credit firm focused on strategic lending, today announced its continued support of the Children’s Tumor Foundation ("CTF" or the "Foundation ...
Illinois has its share of recreational road and bicycle races, and readers and experts in the USA TODAY 10BEST Reader’s Choice Awards gave the state a couple of entries in its latest rankings. The ...
Get to know the rare disease Neurofibromatosis, starting from the symptoms, causes, to the risk factors for this genetic ...
Neurological conditions are some of the most perplexing and confounding parts of medicine. The study of neurons and genes and ...
The ashes of young Cuban boy, Damir Ortiz Ramírez, who passed away this Saturday at the Nicklaus Children’s Hospital in Miami ...
The United States Embassy in Cuba expressed profound sorrow over the death of 10-year-old Cuban boy, Damir Ortiz Ramírez, who ...
A young boy from Cuba who was battling a medical condition died on Saturday after he and his family received a visa to travel to South Florida for treatment. Damir Ortiz was diagnosed with type 1 ...
In a significant step towards raising awareness and providing essential support for Neurofibromatosis Type 1 (NF1) patients, NF Club Thailand is hosting 'Beyond the Fighter', an awareness and fundrais ...
The following represents disclosure information provided by authors of this manuscript. All relationships are considered compensated unless otherwise noted. Relationships are self-held unless noted. I ...
The common list of new drugs ensures that the National Strategy for Drugs for Rare Diseases delivers the most possible benefits to all patients with rare diseases. We will publish the names of drugs ...
Twenty-six unrelated patients of African ancestry clinically suspected to have NF1 were recruited from Genetic clinics across the Gauteng province of South Africa and consented to participate in the ...