Trailer: Pearl Jam frontman Eddie Vedder's new documentary, 'Matter of Time, ' raises awareness and funds for epidermolysis ...

Matter of Time,” a documentary featuring Pearl Jam frontman Eddie Vedder that is set to debut this summer at the Tribeca Film ...

A couple whose son has a rare genetic skin condition say it is hard to process that a cuddle could "tear his skin". Twenty month old Albi was born with a severe form of recessive dystrophic ...

Hannah Campbell announced the tragic news of her daughter Elliana Rose's death on April 8 with a TikTok post shared to over 769,000 followers. Less than one week later, the influencer mom posted about ...

I’m heartbroken, and I’m angry.” Elliana Rose was diagnosed with a rare and highly severe condition called Junctional Epidermolysis Bullosa (JEB) at 2 weeks old. Campbell has documented her daughter’s ...

Liverpool legend Graeme Souness is taking on another huge fundraising swim, to raise money for research into treatments of the rare skin condition Epidermolysis Bullosa (EB). The former player and ...

"The leave is designed to assist new parents whose baby requires care," a representative of HR tech provider Brightmine explained From 6 April there will be a new right to neonatal care leave. Just ...

Epidermolysis bullosa (EB) is a group of inherited disorders ... The Children's Hospital Boston Neonatal Intensive Care Unit averages 1 admission per year of infants with EB.