Gov. J.B. Pritzker has issued an executive order that bars state agencies from collecting and disclosing data about autism to ...

Robert F. Kennedy Jr. testified on May 14 before the House Appropriations and the Senate Health, Education, Labor and Pensions committees.

In back-to-back Capitol Hill hearings, Kennedy touched on abortion access, vaccines, measles, research, mental health and ...

Illinois Gov. JB Pritzker signed an executive order in response to federal efforts to create a database for autism research.

and sharing of autism-related medical data for Illinois residents. "Every Illinoisan deserves dignity, privacy, and the freedom to live without fear of surveillance or discrimination" Pritzker ...

Even then, such efforts must still follow strict privacy and data minimization rules ... to the order. Several Illinois advocates, such as Chicagoland Autism Connection, the Southern Illinois ...

de-identified data,” not “creating an autism registry to track individuals using personal data.” Now, NIH is emphasizing that it will comply with all applicable privacy laws. “Teams at CMS and NIH ...

The US government is launching a new initiative to investigate autism, using medical data from millions of Medicare ... be “consistent with applicable privacy laws to protect Americans ...

The Trump administration on Wednesday announced a partnership between the National Institutes of Health (NIH) and the Centers for Medicare and Medicaid Services (CMS) that will focus on research ...

“Every Illinoisan deserves dignity, privacy ... all people with disabilities.” Illinois is set to become the first state to restrict autism-related data without legal or medical necessity.