Yoseph Williamson, a Colorado Springs teen, is living with a rare genetic disorder that causes painful tumors on his nerve ...

Cruz Hernandez graduated from Bullard High School last week and, hours after obtaining his high school diploma, boarded a ...

Neurofibromatosis is a group of rare genetic disorders that cause benign tumors to form on nerve tissue. Tumors in this disorder are usually noncancerous (benign), but can sometimes become ...

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A rare genetic disorder known as Neurofibromatosis type one, or NF1, affects about one in 2,500 people in the U.S.

BrightSpring Health Services (“BrightSpring” or “BrightSpring Health Services”) (NASDAQ: BTSG) is proud to announce that its ...

Who is Adam Pearson's wife? Adam's love life has been a subject of interest among his fans. Find out if the actor is married, ...

Gomekli (mirdametinib) is the first treatment that is FDA approved for both adults and children with neurofibromatosis type 1 (NF1) who have plexiform neurofibromas (PN). Selumetinib, a drug that ...

The marks can be a sign of Neurofibromatosis (NF) type 1. Doctors at the Children's Hospital of Philadelphia confirmed that's what Mila had, which led to several follow-up appointments.

Moertel CL, Hirbe AC, Shuhaiber HH, et al. ReNeu: A pivotal phase 2b trial of mirdametinib in children and adults with neurofibromatosis type 1 (NF1)-associated symptomatic inoperable plexiform ...

A corn hole tournament is raising support for 7-year-old Coen, who's battling vision loss from NF1. His family says the ...

Colbeck Capital Management ("Colbeck Capital"), a leading middle-market private credit firm focused on strategic lending, today announced its continued support of the Children’s Tumor Foundation ("CTF ...