News

Yoseph Williamson, a Colorado Springs teen, is living with a rare genetic disorder that causes painful tumors on his nerve ...
Neurofibromatosis is a group of rare genetic disorders that cause benign tumors to form on nerve tissue. Tumors in this disorder are usually noncancerous (benign), but can sometimes become ...
Neurological conditions are some of the most perplexing and confounding parts of medicine. The study of neurons and genes and ...
Cruz Hernandez graduated from Bullard High School last week and, hours after obtaining his high school diploma, boarded a ...
A rare genetic disorder known as Neurofibromatosis type one, or NF1, affects about one in 2,500 people in the U.S.
Who is Adam Pearson's wife? Adam's love life has been a subject of interest among his fans. Find out if the actor is married, ...
Gomekli (mirdametinib) is the first treatment that is FDA approved for both adults and children with neurofibromatosis type 1 (NF1) who have plexiform neurofibromas (PN). Selumetinib, a drug that ...
BrightSpring Health Services (“BrightSpring” or “BrightSpring Health Services”) (NASDAQ: BTSG) is proud to announce that its ...
Feb. 12, 2025 – The FDA has approved a new pill for a rare genetic disorder called neurofibromatosis type 1 (NF1). It is for adults and children ages 2 and older who have nerve tumors ...
The marks can be a sign of Neurofibromatosis (NF) type 1. Doctors at the Children's Hospital of Philadelphia confirmed that's what Mila had, which led to several follow-up appointments.
Colbeck Capital Management ("Colbeck Capital"), a leading middle-market private credit firm focused on strategic lending, today announced its continued support of the Children’s Tumor Foundation ("CTF ...
A corn hole tournament is raising support for 7-year-old Coen, who's battling vision loss from NF1. His family says the ...